HR-8620-119
Referred to the House Committee on Energy and Commerce.
Sponsored by Robert Menendez (D-NJ)
What it does
This bill would amend the Developmental Disabilities Assistance and Bill of Rights Act of 2000 to establish a national, toll-free, 24/7 hotline for caregivers of individuals with developmental disabilities. The hotline would provide emotional support, information, crisis intervention, and referrals to local, state, and federal resources. It would authorize $10 million per year from fiscal years 2027 through 2032, to be administered by the Secretary of Health and Human Services directly or through a grant or contract with a qualifying nonprofit organization.
Who benefits
Family caregivers and household members of individuals with developmental disabilities — estimated at over 4 million unpaid caregivers nationally. Individuals with developmental disabilities themselves, who may receive better care if their caregivers have access to support and resources. Community-based nonprofit organizations that could receive federal grants or contracts to operate the hotline. Peer support workers who would be employed by the hotline. Underserved and non-English-speaking caregiver communities, who would benefit from the bill's requirement for culturally and linguistically appropriate services.
Who is hurt
Taxpayers who fund the $10 million annual authorization. Competing nonprofit organizations that do not meet the eligibility criteria (national reach, experience with state-by-state systems) and would be excluded from grant consideration. Caregivers of individuals with disabilities not classified as "developmental" (e.g., acquired brain injuries, age-related conditions) who would not be served by this specific hotline. Existing caregiver support programs that may face indirect competition for federal attention or funding.
Supporters argue
Supporters argue that family caregivers of individuals with developmental disabilities face disproportionately high rates of depression, anxiety, and burnout — with research showing caregiver stress levels comparable to those of people with chronic illness. They contend that no dedicated, nationally coordinated hotline currently exists for this population, leaving millions of caregivers without a consistent point of contact for crisis support or resource navigation. The bill's requirement for peer-to-peer staff, culturally appropriate services, and real-time referrals addresses documented gaps in caregiver infrastructure at a relatively modest cost of $10 million annually.
Opponents argue
Opponents argue that the federal government already funds multiple caregiver support programs — including through the Older Americans Act, the RAISE Family Caregivers Act, and Medicaid home and community-based services — and that creating a new standalone hotline risks duplicating existing infrastructure rather than strengthening it. They contend that $60 million over six years could be more effectively directed to expanding direct services, respite care, or state-level support systems that have demonstrated outcomes, and that a hotline's effectiveness at reducing caregiver burnout or improving care quality has limited empirical support in the developmental disabilities context specifically.